Short of breath, full of Life - Everesting Cystic Fibrosis World Record
Exceeding Life Expecency
Cystic Fibrosis (CF) came with a life limit expectancy until Trikafta/Kaftrio was developed, a lifesaving medication for this chronic lung condition.The cystic fibrosis community, Jason van’t Slot included, didn't know if a medication like this would be available in our lifetimes. Now it is available, but unfortunately because of South Africa’s geography and its financial cost it’s impossible for most in South Africa. f you want to know about this journey and how you can help pls go to www.givengain.com/cc/everesting-for-cystic-fibrosis/
The aim of Jason van’t Slots ‘Everesting’ (the act of cycling laps of a single hill, until the height of Mount Everest (8848m or 29 000 ft) is accomplished in one ride and no sleep) is raising funds and awareness for the South African Cystic Fibrosis Association (SACFA) to support legal negotiations and other costs necessary to facilitate access to this life changing medication (Trikafta/Kaftrio) for all South Africans living with cystic fibrosis at an affordable price keeping in mind the county's poor economic status. This medication is available in selected first world countries, but at the moment those living with cystic fibrosis in South Africa have to go overseas to get their hands on it.It’s also financially impossible for most as the price for a 12 months supply of Trikafta is around R6 million or $311 000.
Credits: A Quite Franckly Film. Production Producer Grant Franck & Marius Van Rensberg - Directed by Grant Franck — Poem Written and read by Grant Franck - Cinematography by Marius Van Rensberg - Sound Design by Greg Canning - Edit by Grant Franck & Marius Van Rensberg - Color by Grant Franck & Daniel De Villiers - Drone Justin Sandmann